I have been missing in action lately on my blog.  I feel like it’s because I have been trying to avoid facing things that are going on in my life.  Thanksgiving was today. Holidays this year are really getting to me.  I’m struggling with the fact that this might be the last holiday season with grandma.  Grandma has been in and out of the hospital lately.  Since the pulmonary embolism was found on her last scan, she has been having dizzy spells.  Her dizzy spells now require that I constantly make sure she’s ok to walk to the bathroom or anywhere else.  I’m also having to make sure she has her two shots of lenovox blood thinner a day.  Usually, we try to get her shots in at 11:00 am and 11:00 pm.

Grandma’s doctor believes that her dizziness is not being caused by the pulmonary embolism.  Her doctor has ordered that she goes to see a neurologist to try to figure out what’s going on.  Blood work and scans have all came back fine.  If nothing else is causing the dizziness it’s a strong possibility that it’s a side effect of the chemotherapy.

So, what am I thankful for this year?  I’m thankful that grandma is here to spend another holiday season with us.  I’m thankful that my husband helps out to the extent that he does, along with having to work as much as he does.  I’m thankful that I have been able to make it through another year of staying strong as  a caregiver.  Even though there are those crazy bad days where I want to run and hide.  I have been able to stick through this situation so far.

This week we plan on getting grandma’s Christmas tree.  Last year she helped put ornaments and decorations up.  This year I will have to do everything on my own because I know she will be too tired.  it’s not that I hate decorating alone.  Decorating for Christmas is a tradition that I always did with my grandma.  This year will be a big change and it makes me sad. Grandma has told me she’s just not into the holidays this year and she just wants her health back.  I usually just sit there for a few minutes when she talks like that.  I then do what I do best….change the subject.

This is probably one of the hardest posts for me to write.  It has brought back a lot of bad memories for me.  In all honesty, I have never really talked much about my life after my parents divorce.  I haven’t even told many of my close friends the full details.  I guess it’s something I have tried to forget about. Until now.  I will address the issue of my real mother and relationship with my parents.  Well, my father is not the issue here.  Just my mother.

In a previous post I let you in on the details of my parents being divorced but I never said what the reasoning was.  Plain and simple, my mother cheated on my father.  My mother also tried to make me cover for her when her “lover” called.  I was 15 years old, scared, upset and confused as to why she put me in that position.  I eventually got sick of covering for her lies and hiding things from my father.  It literally made me sick.  I lashed out by running with the wrong crowd and doing things that a 15-year-old shouldn’t.

On a fall night in September I finally got the courage to fill my dad in on the news.  My father followed my mother when she said she was going to the “store” and caught her with her lover. Of course there was a huge fight and that was the end of the marriage.  I don’t really know why I stayed in the house with my mother.  I guess I didn’t want to change my high school and live in a small apartment with my father.  Maybe in the back of my mind I thought my parents would somehow get back together.  It didn’t happen.

Before the divorce I was extremely close with both of my parents but more so my mother.  My mother took me to horse back riding lessons and my dance/cheerleading practices.  We were best friends.  Then the divorce hit.  Mom started dating a lot and honestly was hardly ever home.  Every new boyfriend that I was introduced to meant nothing to me.  All she dated was losers who would just want to try to take the place of my father and try to take over the house hold with their “rules.”  Some of these men had no idea what they were even doing since they never had children of their own. None of them even lasted for more than 2 weeks.

My brother and I were left by ourselves almost every weekend while she took off with a boyfriend for a 3 day trip somewhere.  Grandma found out through a neighbor at the supermarket that my brother and I were being neglected.  The neighbor was actually close to calling child protective services on my mother for never being around.  I don’t know why I kept my mother’s immature and outrageous behavior a secret for so long.  I guess because I was sort of ashamed of her and what she had become.

When my mom met her (now husband)-Greg, things really got bad.  He had an issue with me from day one.  Greg was really controlling and verbally abusive.  Certain food was labeled for him only, lights had to be out at 7pm every night, and etc.  The worst part about Greg was his yelling and swearing at me for no reason.  Greg would never yell at my brother or give him a hard time.  I got singled out for whatever reason.  I eventually got sick of this atmosphere and approached my mother about it.  Unfortunately, she decided to take Greg’s side and I ended up getting kicked out of her house at the age of 16.  Grandma being the sweetheart that she is, took me in and cared for me.  Grandma made sure I had dinner every night, clothes, money, and a roof over my head.

Now, years later my grandma has made me who I am.  I have completely changed my life around and I have learned how to be strong and live a happy and healthy life.  I could not be more thankful for her and her wisdom.  I owe a lot to my grandma and it kills me to see such a sweet women going through this disgusting cancer illness. This is why I have chosen to be my grandma’s caregiver no matter how hard it may get.

Mom and I only talk every few months now.  When I say we talk I mean small talk and only for about 5 minutes or so. Usually only through text messaging.  She also decided to move halfway across the country.  Greg is still with her, brainwashing her. My mother stays for his money I know it. Mom still is in denial of things and has no desire to talk or try to make things better between us.  My brother and his wife are the favorites with her.  I realize that will never change.  I’m just so thankful for my grandmother showing me the love of a real mother.  Whenever people ask me about my mom I tell the story of how my grandma took me in and showed me real family love.

I have gotten so used to changing the subject in the past year.  I’m pretty much a professional at it.

When talking with grandma she will sometimes bring up the subject of death and knowing that she will never get better.

Ever since grandma met with a surgeon to discuss removing her cancer spots on the liver, she hasn’t really been the same.  He told her that she had no chance of getting surgery and her prognosis was 1-2 years to live.  I know he was trying to be truthful and give his medical opinion, but honestly I feel that was not the best way to say it.  His tone of voice was just so nonchalant.

I still remember sitting with her in that cold doctor’s office.  I remember the doctor being so quick to the point and insensitive.  After he walked out of the room and of course had the nerve to wish her the best, grandma and I sat there in silence.  After a few minutes she said “Sherry, now I have to start planning for my funeral don’t I?”  This was one of the most horrible things I have ever heard her say.  Fighting back tears and looking the other way,  I replied “Please don’t think like that.  You will be the miracle, you’re a fighter like me.” I then turned the subject into where we should go for lunch. “The Cracker Barrel Restaurant” she replied.  The Cracker Barrel is her favorite.

I remember running to the bathroom at the restaurant and crying my eyes out. Wishing that I hadn’t taken her alone to that appointment.  Mad that her children weren’t there with us. We both could have used some moral support.  I quickly fixed my makeup to hide the redness around my eyes from crying so hard.  Grandma hates when people cry around her.  I went to join her at the table.  I ordered my favorite chicken and sides even though I hardly had an appetite. I wondered if she could tell I was crying.

A few family members and I have asked grandma if she would be interested in getting another opinion and she is not.  Doctors feel that her cancer is too aggressive and she is so weak now. If they took the chance of doing surgery on her then she will have to be off of chemotherapy for too long.  You really can’t win either way.  This terrible stroke hasn’t helped matters either.

As much as I hate to change the subject I know it’s what works best around grandma now.  I will keep using my talent just to keep her in a good mind-set as long as I can.

Walking downstairs this morning to do my usual routine I felt a feeling of true acceptance for once.  I’m starting to accept the fact that this is how things are now.  I know that no matter what I do to change things I can’t. I look at the tv in the living room and try to remember the last time I have heard it turned on.  Maybe about a week now.  Hours at night used to be spent with grandma in front of that tv. We would play along with the game show The Family Feud.

I walked into grandma’s room and saw her laying there snoring.  I have to question myself lately if I should even bother to wake her up.  Every time I wake her from her slumber she usually just says that she’s fine but needs to get some sleep.  Maybe her sleep helps her to get her mind off of how sick she is.  Maybe her good dreams are what helps her through the day. I realize that her speech therapist is coming at 11 am.  I have to get her up.

Doctors have told her that she needs to get up to at least try a hobby or walk around for 30 minutes a day.  I try all the time but I have not had any success with this. I wonder to myself if it’s even worth trying to get her to do something she doesn’t want to do.  Certain family members get on my case about this.  I try time and time again to at least get her to go for a drive with me.  Still she is not interested.  I stop myself from feeling bad about failing to get her up.  I know it’s her decision and she is very ill.

Grandma’s friends call me to check up on her and ask if she is in the mood for visitors.  I have to be the one to tell them no because she is no longer interested in talking to her friends or having people over. I feel as though I’m always the girl with the bad news with them now.  I hate being that person stuck in the middle.  They seem to have a hard time understanding why she has no interest in seeing them.  In reality I’m the one who lives with her.  I’m the one who really knows how stubborn she has become through all of this.

It’s crazy what humans can accept over time and what feels the “norm.”

These past few days have been hectic.  I had my wedding anniversary and managed to get out for a few hours for a quick dinner with my husband.  Earlier in the day was spent at two different doctor offices.  One visit was for grandma and one was for my husband.  Yes, now my worries have also shifted to my husband.  His health has not been great lately and doctors are having a hard time figuring out what’s wrong with him.  I can only hope they get to the bottom of what’s going on very soon.

I find my mind thinking all kinds of thoughts lately.  Most of the thoughts I try to shove to the back of my mind so I can keep myself from going crazy.

Chemotherapy day was Friday.  After every chemo treatment grandma receives it seems to make her worse.  Grandma is tired, depressed, and almost lifeless at times.  It’s hard to get her out of bed and even interested in anything.  The only time I can get her out of bed has been for her dinner.  She demands dinner every day at 4:30.  Her dinner is always followed by her coffee and dessert, then straight to her bed for the rest of the night.

Today was spent doing my weekly cleaning of her whole house and laundry.  I asked grandma at least 10 times if she wanted to get out of bed for a while.  She would not.  Doctors tell her at every appointment that she needs to start getting up more.  She’s not interested in following that advice.

“Let me know if I can help you with anything!” Don’t you just love when people say that line? It’s almost like it’s something that has to be said but a lot of the time it’s never put into action.  This line is almost always stated after something bad has happened in someone’s life.

I have heard that line millions of times over the past year from probably close to 20 people.  Out of those 20 people about 2 have actually followed through with their offer.  Now, let me be clear that I’m not seeking everyone to help me.  I only seek the people who really should be there…..Family.

Lately my family members have taken a back seat to helping out. I feel like I’m bothering them when I ask them to take grandma to a doctor’s appointment once in a while. Nothing makes me more frustrated than when they come up with some lame excuse.  Especially when it’s on a day of my wedding anniversary and I have plans I have to cancel.  I have to take on the role of trying to hold my marriage together while balancing my role as a caregiver.  Don’t get me wrong, my husband is wonderful with helping me out when he can.  I feel guilt sometimes when time we could be spending together has to be put on hold.  I feel guilt that he has to go to work every day and worry about what’s going on at home and worry about how stressed I am. I fear that someday he will get sick of everything and decide he wants out of this marriage.

I feel that my aunts and uncles need to be adults and step up to the plate.   I mean these are her kids!  My grandparents have worked so hard their whole lives to assure that my aunts and uncles had a good life.  They are all successful people.  The only success they lack is how to be good family people.

Every other Friday is a chemo day.  Most of the time my husband and I drive grandma to these appointments.  One uncle always has an excuse, another uncle is never around, and my aunt is always taking a 3 day weekend to go on her mini vacations.

Grandma doesn’t talk about her kids much anymore.  The past few weeks since the stroke she hardly talks about anything.

I wonder if maybe her kids just can’t handle what’s going on.  I wonder if maybe it just makes them so upset to see their mother in this position.  In my opinion it’s selfish.  I feel bad every day seeing her struggle.  It doesn’t make me feel good to see her feel so down.  I however, am not going to stop spending time with her, or stop helping her because of my feelings.  Sometimes feelings need to be put to the side in order to help someone out who is in need.

In times of struggle and hardship family should be the people who you can turn to.  The best solution would be to work together as a team.  Unfortunately, I know life is not a dream world and this doesn’t always happen.  I do realize that I can’t change people and they are just set in their ways.  I just wish they would stop saying “Let me know if I can help you with anything” when they truly don’t mean it.

What is the hardest part about caring for someone who is ill?  Control.  Or loss of control I should say.  When we care for someone we only have control of our actions and things we do to help out.  We only have control of our attitudes and the positive and caring words we say.

We have no control over how the ill person feels and no control over how sick he/she might be.  Yes, the hardest part is not being able to make that person completely better and sometimes that is what can really bring a caregiver down.

I admit that sometimes feelings of guilt can kick in.  You want so badly to be able to make the ill person better.  You might feel like you don’t deserve to be happy since the ill person is not.  Guess what?  You do deserve to be happy.  You deserve to feel like a good person.  You know why?  Because YOU ARE.  You are taking the time to help someone in true need.  To truly help someone you have to give up some control.  Realize that what is meant to be will be. Live every day knowing that you are trying your best to make another person’s life as great as you can.  That is one of the best gifts you can give.

At first when my grandma was diagnosed with cancer I struggled a lot with the fact that I had no control over making her better.  I would cry for hours thinking of ways that I could try to take some control back.  I found none. I had to learn to just let the doctors do what they can and I had to do what I could.  This was a very hard battle for me to fight.  I still have to remind myself that I am truly doing the best I can.

Thoughts of failure.  It’s easy to feel like a failure because you cannot make everything better.  Just remember that as long as you are showing your love and compassion to the ill person, you are not a failure. You are in fact a true hero.

It’s amazing how much life can change someone after a stroke.  It’s almost like that person is lost inside their own mind.  Certain things come easy to memory and many other things do not.

That morning my husband had just got in the door after working third shift.  I  was laying half awake in bed trying to fall back to sleep.  I heard a huge bang noise downstairs but dismissed it as being the door since it’s sometimes really loud. My grandparents live in the downstairs of the house.  Thank gosh my husband is a worrier and he  decided to go and check out the noise.

Within about 5 seconds I hear my husband screaming my name.  As I run down the stairs I hear my husband on the phone with 911 saying “she’s not responding.”

As I go into the kitchen I see grandma laying on the floor.  At first the idea of a stroke never crossed my mind.  I figured maybe she had just fallen and became unconscious from bumping her head.  It was a chemo weekend.  Sometimes after chemo grandma can feel a little dizzy and extremely tired.  I called her name out and noticed that she was able to move her fingers slightly.

Once we got to the hospital the doctors were for sure she had a stroke.  Clot busting drugs were administered right away.  After about a week she was checked into the rehab area for her speech and physical therapy.

During speech therapy 4 words were given that she had to try to remember for the next day.  These words were pink, dog, table and cup.  My husband and I took a walk down to the hospital gift shop and saw the perfect stuffed animal to help grandma remember some of her words.

Ever since she received this dog from us she has not let it out of her sight.  She even sleeps with it in her bed every night.

Now that grandma is home I find her to be very depressed.  I see her being frustrated when she can’t figure out what her cell phone number is.  I see her being frustrated with trying to figure out her bills.  I try my hardest to work with her and have her repeat phone numbers and memorize words.

The hardest part is that her Avastin is no longer being used.  Doctors believe that the Avastin is what contributed to her stroke.  Scans before this stroke already showed cancer spots on the liver not shrinking.  I can’t help but wonder how long she will be able and willing to fight this battle.  The only thing I can do as her caregiver is to try to make every day the best possible day for her.

Wake up with only about 4 hours of sleep

wake

Realize that you have 20 minutes to get breakfast together.  You have to take your loved one to the doctor appointment you forgot about that is supposed to be in 1 hour! No time to shower, fix hair or put on makeup.

doctor visit

When the doctor says another negative comment to your loved one and you know it will be a long drive home.  Time to start thinking of positive things to say!

oh hell no

Getting your loved one home and time to start the cleaning, laundry, more cooking and scheduling more appointments

cleaning

Dealing with a family member on the phone who calls to order you around but never helps enough!

bitch slap image

Realize that you haven’t had time to shower in 2 days

haven't showered image

When you have 2 minutes to yourself at the end of the day

relax

When your loved one says something really sweet and thanks you.  Makes everything all worth it

hug

After our latest visit to the doctor it has finally sunk into grandma that she will probably never be driving again, never be able to go back to her job with her friends, and never be able to have the lifestyle that she loved and lived for many years.

Let me tell you she is not happy.  Driving home she said to me in a soft voice “But I just want my life back.”  Of course after hearing this it was up to me to cheer her up.  I struggled with what words to use and what to say.  How can telling someone they can’t do what they love anymore be put into positive words?  I guess it can’t.  All that I can do is tell her how to find a new lifestyle to love and adapt to.

I thought back to a time when I felt like I wanted my life back…….

Growing up until the age of 15 I had a fairly good home life.  My parents encouraged my brother and I to have hobbies and helped us in every way possible to succeed in those hobbies.  I had competitive horse back riding and dance/cheerleading.  My brother had his dirt bike riding.  Weekends were spent doing family activities and home cooked meals around a dinner table.  We were a close family for years.

When I was 15 years old my parents decided to divorce for many reasons.  After marriage therapy and many arguments it was over.  The comfort of my family was gone.  Divorce papers were signed and suddenly my brother and I had to accept our new life and learn to live with parents who would no longer even speak to each other.

For years after the divorce I felt that I wanted my family back.  I wanted my life back.  I eventually started to realize that it was the comfort I missed.  It was the fear of something new that I wasn’t looking forward to and didn’t know how to handle at the time. I had to learn to love my family in a different way.  Not as a group but as individuals.

Sick or not sometimes I think everyone  comes to this bump in the road.  Something or someone may cause you to have to rearrange life and how you live.  There is nothing we can do sometimes but pick up the pieces and move on.